Well the mri results are in. There are a few lesions in the white matter of the brain but not enough to give a multiple sclerosis diagnosis so I am verrry happy about that. The diagnosis is peripheral polyneuropathy – a condition that occurs when the peripheral nervous system becomes damaged. In my case, probably caused by my compromised immune system - previously testing positive to diseases such as rheumatoid arthritis, shingles, cytomegalovirus (all linked to nervous system damage) – together with the congenital bronchiectasis and resultant aggressive drug treatments particularly for the ‘TB family’ bacteria. In retrospect I know that this condition has been around for a number of years but the symptoms have been explained as anxiety, lung infections, overexertion, depression. Anyway most of the symptoms have settled down – still have the ice block feet. tingling and weakness in left hand, and burning tongue and throat – but I can cope with these. Maybe they’ll go away as well, who knows…I couldn't get any answers from the neuro except for everybody being different in their prognosis. Supposedly no cure but treatment for any symptoms that arise. But I'm relieved that the wait is over and just look forward to getting on with life and leaving the last few weeks...well the whole of this year really (except for the love I've shared with so many lovely people)...behind!
photo by Laurence Philomene