Friday, November 20, 2009

and the journey continues...

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Well the mri results are in. There are a few lesions in the white matter of the brain but not enough to give a multiple sclerosis diagnosis so I am verrry happy about that. The diagnosis is peripheral polyneuropathy – a condition that occurs when the peripheral nervous system becomes damaged. In my case, probably caused by my compromised immune system - previously testing positive to diseases such as rheumatoid arthritis, shingles, cytomegalovirus (all linked to nervous system damage) – together with the congenital bronchiectasis and resultant aggressive drug treatments particularly for the ‘TB family’ bacteria. In retrospect I know that this condition has been around for a number of years but the symptoms have been explained as anxiety, lung infections, overexertion, depression. Anyway most of the symptoms have settled down – still have the ice block feet. tingling and weakness in left hand, and burning tongue and throat – but I can cope with these. Maybe they’ll go away as well, who knows…I couldn't get any answers from the neuro except for everybody being different in their prognosis. Supposedly no cure but treatment for any symptoms that arise. But I'm relieved that the wait is over and just look forward to getting on with life and leaving the last few weeks...well the whole of this year really (except for the love I've shared with so many lovely people)...behind!

24 comments:

Michelle said...

Good, i am glad you are back....and I didn't even know you were having all these issues.

Love to you

xxx

Jetta's Nest said...

So glad you've got a diagnosis and now you can get some treatments that might help!

Take lots of care with yourself, OK!!

Sam

Alicia @ boylerpf said...

So glad there are some answers for you and you can now ride the get well train. Not knowing is sometimes worse than the actual thing we're fighting. Get well quickly!!

Sonia ;) said...

Im glad its not MS..I was thought to have that also..and I have been diagnosed with Fibromyalgia instead...constant pain disorder because the pain receptors in the brain are shot and I always have pain some way or another...Cold feet, tingling in arm legs depending on the day. On medicine therapy..trying meds to relieve the pain...its ahhh...but could always be worse.....

Im glad your fine..and I understand the worry with the mri....

Blessings

The Stapelia Company said...

Oh Chrisy! I'm glad to hear that you got at least some answers. It sounds like you've had a rough go of it my friend. Take care of yourself.

mermaiden said...

Great attitude in the face of life's difficulties...it makes all the difference :D

Clorivak said...

Well that's a relief that is not as bad as it could of been, right? I do think your attitude is great. Ever hear of essential oils? They are very healing for many different health issues. You should do some research or I could if you like. They used to use these way back in history,it was their medicine, and don't have side effects like prescription drugs have. They are nature's medicine..and are really quite amazing. I know from experience.
I think you will be fine,keep looking up and your positive attitude will conquer this.

erin said...

I am sending positive healing vibes and prayers your way........

Joanna Jenkins said...

Oh the ups and downs of a compromised immune system. Glad they got to the bottom of things and I sincerely hope your symptoms stay below the surface and easier to deal with. You have a great attitude and that's half the battle.

Hang in there. I'm cheering you on!

xo

tractorgirl said...

I'm so glad that it's not as bad as it could have been. Good to know what you're dealing with, I think it's always better than not knowing and worrying yourself sick.
Love to you, "stay well" thoughts are heading your way.

jeannette stgermain said...

Life throws us for a loop sometimes. But I can see you are determined to make the best of it:)
You are a courageous woman, Chrisy! Hope that they'll find out which meds. will be the best for you, soon!!
Keep walking dear girl, it will help you to focus your thoughts away from not feeling well.

jeanamarie said...

This year does sound like it has been a rough, to say the least, one for you!

I am glad to hear it is not MS and that the symptoms are treatable, and that it has a name - sometimes that can be such a relief. Thank you also for your kind words over at my blog. I hope you are able to get lots of rest and the care that you need.

DELiciousDesignz said...

Chrisy, thanks for sharing - Good to see you that you are being so positive and that you have some answers - take care xo

Hey Harriet said...

You must be so relieved to not have received a MS diagnosis, but it still sounds like a difficult thing to be going through. As others have said, you have a great attitude Chrisy. Continue being positive and carry on being the awesome person we know and love you for! xo

Renee said...

I love you Chrissy and you are amazing and incredible.

All of those horrible symptoms, the burning tongue (mine was an iron tasting tongue), the numbness (arm and shoulder and hand), I hear all of it and it makes me so mad and yet I completly understand because I have so much of it.

Chrissy it sucks and what we have to remember is that we don't. We don't suck the illness does.

You are brave and a warrior and this is war.

You will win, of that I have no doubt.

Love Renee xoxo

ArtSnark said...

Sending giant virtual hugs to you! So glad you have some answers at least.

And so very happy to "see" you - thanks for popping by my blog.

ArtSnark said...

Forgot to mention - love love love the photo on top of post!

Maureen said...

Good to hear things are not so scary, more manageable. Glad to have you back!

Rose said...

My gosh, you make it sound not bad, you are so very brave! Thank goodness for not having an MS diagnosis.
Rest up and take care.

Rose

NANCY LEFKO said...

Hopefully any symptoms you have can be managed well...take care of yourself and be happy.

Kristina P. said...

Thanks for stopping by my blog! What a scary thing to go through, although, you are probably relieved that you know what's wrong.

Elizabeth said...

I can relate to the the NO CURE, but treatment of symptoms. My journey was similar to yours. After 4 years and slight progression, more test, earlier this year it was changed to cervical stenosis, my spinal cord is being compressed. They also found multiple tumors within my spine and neck, causing bulging and pinching of nerves. In 2002, the MRI showed lessions similar to yours and the stenosis was listed as mild but they didn't think that was what was causing my problems. In 2006, my neuro then dx with me IBM, then 3 years later comes to this conclusion. It can get ridiculous but I just LIVE with what ever is happening and don't worry about a DX anymore.

flossy-p said...

I'm so relieved to hear the news isn't as bad as it could have been, but I'm still feeling for you all the same. At least now you know, and perhaps each symptom can be eased in some way individually.

Still sending you my healing vibes though all the same :)
Take care .xx.

Vicki said...

Glad to hear your prognosis is not so severe Chrissy. Take care of yourself and keep positive (says she who has no medical problems) Love and prayers
Vicki x
I love the seagull nicking the chips movie by the way it's classic :D